Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) Article Summary
Reference: Şimşek TT, Sertel M, Yümin ET, Aras B, Narayanan UG. Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Turkish non-ambulatory children with cerebral palsy. Turk Pediatri Ars. 2019;54(1):13-27. Published 2019 Mar 1. doi:10.14744/TurkPediatriArs.2019.57778 Purpose: The purpose of this study was to transcribe the CPCHILD outcome measure to Turkish in order to assess the reliability and validity among 82 young children with cerebral palsy. Population: 82 children ages 5-18 with cerebral palsy were recruited for this study. Of the children recruited for the study, 26 children were level III, 30 were level IV, and 26 were level V when graded using the Gross Motor Function Classification System. The children were selected from 5 different special education and rehabilitation programs. Methods: The CPCHILD is an outcome measure utilized specifically for children with cerebral palsy. This measure assesses domains including…
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Zalmstra T, Elema A, Huizing K, Reinders MH, v.d. Putten A. Longitudinal validation of the Caregiver Priorities and Child Health Index of Life with Disabilities in a Dutch sample of nonambulatory children with severe disabilities. Child: Care, Health & Development. 2019;45(3):409-416. doi:10.1111/cch.12663 Purpose: The purpose of this study was to determine the validity long term of the Dutch translation of the Caregiver Priorities & Child Health Index of Life with Disabilities (CPCHILD) in order to determine if it is an effective outcome measure. While the CPCHILD has been validated across language translations, sometimes exact translations, to maintain validity, might not always reflect cultural, community, or social differences and might vastly alter caregiver responses. Study Population: Caregivers of 38 non-ambulatory Dutch children (ages 4 – 18 years old) categorized as an individual with severe disabilities as a result of cerebral palsy were recruited for the study. Methods/Outcome Measures: Zalmstra et…
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Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) CPCHILD Questionnaire1: Authors: Unni G. Narayanan Shannon Weir Darcy Fehlings Publisher: The Hospital for Sick Children & Holland Bloorview Kids Rehabilitation Hospital (150 Kilgour Rd. Toronto, Ontario, Canada M4G 1R8)1 Costs (questionnaire PDF): Free for non-commercial use such as education or clinical use; quotes provided on a per-project basis for research2 Purpose: Measure of caregivers’ perspectives on health status, functional limitations, and well-being of children with cerebral palsy (CP) who are more involved (nonambulatory; Gross Motor Function Classification System (GMFCS) IV & V)3. Measures caregiver’s perspective about the child’s health status, comfort, wellbeing, functional abilities and ease of caregiving. Identify areas that are impairing the child’s quality of life (QOL), determine what is most important to the child and caregiver, and monitor the child’s progress in a way that is meaningful to the family2. Type of Test: Evaluative instrument to measure change…
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