Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) Article Summary
Reference: Şimşek TT, Sertel M, Yümin ET, Aras B, Narayanan UG. Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Turkish non-ambulatory children with cerebral palsy. Turk Pediatri Ars. 2019;54(1):13-27. Published 2019 Mar 1. doi:10.14744/TurkPediatriArs.2019.57778
Purpose: The purpose of this study was to transcribe the CPCHILD outcome measure to Turkish in order to assess the reliability and validity among 82 young children with cerebral palsy.
Population: 82 children ages 5-18 with cerebral palsy were recruited for this study. Of the children recruited for the study, 26 children were level III, 30 were level IV, and 26 were level V when graded using the Gross Motor Function Classification System. The children were selected from 5 different special education and rehabilitation programs.
Methods: The CPCHILD is an outcome measure utilized specifically for children with cerebral palsy. This measure assesses domains including personal care, positioning, transfers and mobility, communication and socialization, comfort, emotions and behavior, health, and quality of life. The measure was approved and translated from English into Turkish by two translators. The translators met with a group of physical therapists to finalize the measure and compare it to the original version. The translated version was tested on 20 parents of children with cerebral palsy.
Outcome Measures: Caregiver Priorities and Child Health Index of Life with Disabilities.
Intervention: The main intervention utilized in this study was the modified CPCHILD which was transcribed into Turkish to benefit Turkish children and caregivers.
Results: The Turkish version of the CPCHILD displayed good reliability and validity when compared to the original version. The results are suggestive of good to very good test retest reliability and consistency of the measure. It also displayed good to very good concurrent validity in 5 of the 6 domains of assessment (all but health).
Strengths: A major strength of this article was evidenced in the good to very good levels of both reliability and validity. This will allow for the measure to reach more children and caregivers in a way that is still clinically useful and comparable to the original CPCHILD.
Limitations: The CPCHILD was compared to the CHQ PF-50 for construct reliability, which is not a cerebral palsy specific outcome measure. The information provided in the questionnaires was subjective from the caregivers. These responses could have been skewed by emotional response or educational level.
Conclusion: The Turkish modifications made to the CPCHILD showed to be both valid and reliable when assessing children with moderate to severe cerebral palsy in both clinical and research venues.
One response to “Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) Article Summary”
Leave a Reply
You must be logged in to post a comment.
I think this article is very interesting in that the outcome measure was still found to be reliable and valid after being translated. This is helpful as it helps our profession become more accessible to everyone.